What is it Like to Have FASD?

February 28, 2012 by rosie  
Filed under Fetal Alcohol Spectrum Disorders (FASD)

Ever wonder how someone with Fetal Alcohol Spectrum Disorders feel? If yes, view this video short Public Service Announcement by Morgan Fawcett.

NOFAS Weekly Roundup Newsletter-Febuary 6, 2012

FASD Expert – Claire Coles

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Dr. Claire Coles, Professor of Psychiatry at Emory University School of
Medicine, discusses the effects of FASD, including mathematics deficits and
arousal disregulation.  Dr. Coles stresses the importance of early intervention
and points out the ongoing problem of women drinking before they know they are
pregnant.

NOFAS to Host Congressional Briefing on FASD

NOFAS will host a Congressional Briefing on FASD on Wednesday, February 15 from
Noon – 1:30pm at the U.S. Capitol Visitor Center in Washington, DC.  If you wish
to attend, please email montgomery@nofas.org <mailto:montgomery@nofas.org>  by
Monday, February 13.  There is still time for FASD advocates to urge their
United States Senators to co-sponsor upcoming FASD legislation!  Please see the
link above and take action by February 15.

FEATURES

Wonder Dog

How Iyal Winokur, a young man with FASD, was forever changed by his service dog,
Chancer.  Iyal is the son of Harvey and Donnie Winokur of Roswell, Georgia.
Article, New York Times Magazine, February 2, 2012

Eureka ranch gives children, many abandoned in Russia, second chance

The Ranch for Kids Project in Montana gives kids with FASD hope for the future.
Article, Missoulian, February 4, 2012

Sister Sleuth: Family Reunited With A Little Digging, Help Of Facebook

Three sisters, all prenatally exposed to alcohol and placed in the foster care
system, reunite after twenty-five years.
Article, East Oregonian, February 2, 2012

Pregnant women ‘ignoring alcohol warnings’

Despite new warnings on alcoholic beverage labels, pregnant women are continuing
to drink in Australia.
Article, WA Today, February 2, 2012

Is it safe to drink alcohol during pregnancy?

How FASD is affecting children in the Kimberley region of Australia.
Video/Article, ABC OPEN, January 31, 2012

NOFAS Weekly Roundup – Volume 2, Issue 38

September 29, 2011 by rosie  
Filed under Fetal Alcohol Spectrum Disorders (FASD)

The NOFAS Weekly Roundup features news articles, research, event
announcements, new materials and other highlights from around the world
of FASD. The Roundup also includes the latest news from NOFAS and a link
to the Calendar of Events page on the NOFAS website.

FEATURES

Pennsylvania parents guilty in death of adopted Russian boy

Parents of a boy with FAS have been charged with his death in
Pennsylvania.

Article, Las Vegas Sun, September 22, 2011

Deadly trouble reached out for teen who had left troubled life behind

Katrishay “Shay” Quarles of Denver, a young woman with FAS, was recently
killed after turning her life around for the better.

Article, Denver Post, September 22, 2011

A Second Chance for Everyone

Susan Fischer and her ten adopted children with FAS give local animals
in need a second chance.

Article, Patch.com, September 22, 2011

Phil Parry honored for Fetal Alcohol Spectrum Disorder work

Longtime FASD advocate, Phil Parry of Lassen County, California has been
recognized for his work in raising awareness of FASD in his community.

Article, Lassen County Times, September 22, 2011

Hundreds of Finnish newborn babies damaged by alcohol

Hundreds, and perhaps thousands, of children in Finland were born with
FASD in recent years.

Article, Helsingin Sanomat, September 22, 2011

What it’s like to live with FASD

Shirlana Vance of Canada shares her story of living with FASD.

Article, 100 Mile House Free Press, September 21, 2011

Binge-Drinking Among Women Is Up: Study

A recent study from Washington University School of Medicine reveals
that binge drinking among women is on the rise, as are the risks of
alcohol-related problems including FASD.

Article, The Huffington Post, September 19, 2011

Northland women warned not to drink while pregnant

Staff members of the Ngati Hine Health Trust of New Zealand recently
took to the streets to raise awareness of FASD.

Article, The Northern Advocate, September 19, 2011

NOFAS

Video Highlights from the 2011 NOFAS Leadership Awards Benefit

Highlights from the 2011 NOFAS Leadership Awards Benefit.  Speakers
include Senators Tom Daschle, Lisa Murkowski, and Jeff Bingaman.  Award
recipients include researcher Dr. Philip A. May, advocate Morgan
Fawcett, and substance abuse counselor Rusty Walking Eagle, recipient of
the first Dr. Erin Frey Advocacy Award.

CALENDAR OF EVENTS

NOFAS Weekly Roundup – September 19, 2011

September 20, 2011 by rosie  
Filed under Fetal Alcohol Spectrum Disorders (FASD)

NOFAS Weekly Roundup - Volume 2, Issue 37

The NOFAS Weekly Roundup features news articles, research, event
announcements, new materials and other highlights from around the world
of FASD. The Roundup also includes the latest news from NOFAS and a link
to the Calendar of Events page on the NOFAS website.

FEATURES

New interventions for Fetal Alcohol Syndrome

The FASD Action Network of Ontario, Canada recently held its 2nd Annual
Breakfast and Bell Ringing for FASD Awareness Day.

Article, Kingston This Week, September 18, 2011

Massey hosts FASD conference - full house

The North Shore Tribal Council recently held an all-day conference on
FASD to promote healthy pregnancies for the women of Canada.

Article, The Mid-North Monitor, September, 15, 2011

Education can be part of FASD treatment, 

The Kenora Association for Community Living of Canada urges individuals
to understand that education can be an integral part of FASD treatment.

Article, Miner and News, September 14, 2011

FASD Awareness Day recognized in Wetaskiwin
<> 

The Prairie Central FASD network of Canada recently held a special event
at a local library to raise awareness of the 2,600 individuals in
Alberta living with FASD.

Article, The Wetaskiwin Times, September, 14, 2011

Pregnancy, alcohol and FASD

Baby's Best Chance of North Dakota increases community knowledge of FASD
for FASD Awareness Day.

Article, Grand Forks Gazette, September 14, 2011

Mocktails served at Thompson Rivers University

As students were welcomed back to Thompson Rivers University of
Kamloops, Canada, Insight Support Services raised student awareness of
FASD with mocktails on campus.

Article, The Daily News, September 9, 2011

Trimega Laboratories Develops World's First Commercial Test for Fetal
Alcohol Syndrome

Trimega Laboratories of South Africa is working toward developing a test
that will test for FAS in newborns.  The experimental exam 'detects FAS'
by testing meconium, the first stool sample of a newborn infant.

Article, PR Newswire, September 9, 2011

Fetal Alcohol Spectrum Disorders - 100% Preventable

The Chiesman Center for Democracy of South Dakota raises public
awareness for FASD Awareness Day--emphasizing that FASD is 100%
preventable.

Article, MSNBC - Rapid City, September 9, 2011

NOFAS

Kara Kennedy (1960 - 2011) 

Founding NOFAS Advisory Board Member Kara Kennedy, daughter of the late
Senator Edward Kennedy, died this past week at the age of 51.  

NOFAS Inducts Dr. Grace Chang to the Tom and Linda Daschle FASD Hall of
Fame 

NOFAS welcomes Dr. Grace Chang to the FASD Hall of Fame!

CALENDAR OF EVENTS  

'Like' NOFAS on Facebook

Join the Friends of NOFAS Network Today!

 

NOFAS Weekly Roundup – August 30, 2011

September 13, 2011 by rosie  
Filed under Fetal Alcohol Spectrum Disorders (FASD)

NOFAS Weekly Roundup – Volume 2, Issue 34

The NOFAS Weekly Roundup features news articles, research, event
announcements, new materials and other highlights from around the world
of FASD. The Roundup also includes the latest news from NOFAS and a link
to the Calendar of Events page on the NOFAS website.

FEATURES

For Whom The Bells Will Toll

Susan Rose of the Fetal Alcohol Syndrome Support Network of New York
City and Long Island along with the Community Church of Douglaston and
the Zion Episcopal Church will ring bells on FASD Awareness Day,
September 9, 2011.

Article, Douglaston Patch, August 26, 2011

Governor Beverly Perdue Declares September 9th, 2011 to be Fetal Alcohol
Spectrum Disorders Awareness Day in North Carolina

Thanks to the efforts of NOFAS North Carolina, Governor Beverly Perdue
has declared September 9 to be FASD Awareness Day in the state of North
Carolina.

Article, Prevention North Carolina, August 25, 2011

Stem cell treatment…on a dog!

FASD service dog, Chancer, recently underwent stem cell treatments to
treat arthritis in his hips and legs.  Chancer is owned by Iyal Winokur,
son of Donnie and Harvey Winokur of Roswell, Georgia.

Video, ALIVE 11 – Atlanta, August 24, 2011

New Beginnings for Florida Fights FASD

The Florida Center for Early Childhood, home to Florida’s first FASD
diagnostic and intervention clinic, will be taking over the Florida
Fights FASD campaign.

Article, Florida Fights FASD, August 2011

Pediatric Live Chat on FASD

FASD: Current Diagnostic and Intervention, a special live chat from the
American Occupational Therapy Association (AOTA) featuring FASD experts
from Creighton University and the Arctic FASD Regional Training Center.

Chat, TalkShoe, Summer 2011

NOFAS

On August 18 and 19, NOFAS Vice President, Kathy Mitchell provided an
overview of the Centers for Disease Control and Prevention (CDC) funded
NOFAS Clearinghouse and Media Outreach Center: A Model of Collaboration,
Communication and Capacity Building project to participants of the CDC’s
National Center on Birth Defects and Developmental Disabilities FASD
Regional Training Centers (RTC) Grantee Meeting held in Atlanta,
Georgia.  Participants at the meeting heard presentations from Jeanne
Mahoney, Director of the Partnership Project; the American College of
Obstetricians and Gynecologists (ACOG); and Faiza Khan, MPH, FASD
Program Manager for American Academy of Pediatrics (AAP). The meeting
also featured presentations on recent activities and updates from all of
the CDC RTC’s including:

Great Lakes FASD RTC – David Wargowski, MD; Georgiana Wilton, PhD; Ron
Prince, MS; Barbara Vardalas, MA.

Southeastern FASD RTC – Roger Zoorob, MD, MPH, FAAFP; Kristy Durkin,
MSW, LCSW; Carmela Joy Hayes, BA; Yasmin Senturias, MD.

Midwestern FASD RTC – Leigh Tenkku, PhD, MPH; Beth Barlet, MD; Joy Doll,
BSOT, Wes Jones, PhD,  Kevin Rudeen, PhD; Jesse Walls, MSW.

Frontier FASD RTC – Nancy Roget, MS; Michelle Berry, MBA; Joyce Hartje,
PhD.

Arctic FASD RTC – Becky Porter, MS, LPC; Alexandra Edwards, BA (Hons);
Bridget Hanson, PhD.

For more information about the CDC RTC’s, please click here

CALENDAR OF EVENTS

NOFAS Weekly Roundup – Volume 2, Issue 35

September 13, 2011 by rosie  
Filed under Fetal Alcohol Spectrum Disorders (FASD)

NOFAS Weekly Roundup – Volume 2, Issue 35

The NOFAS Weekly Roundup features news articles, research, event
announcements, new materials and other highlights from around the world
of FASD. The Roundup also includes the latest news from NOFAS and a link
to the Calendar of Events page on the NOFAS website.

FEATURES

9:00 AM on September 9th – Pow Wow for Fetal Alcohol Syndrome Awareness

The Fetal Alcohol Awareness Committee of Thunder Bay, Canada will host a
Pow Wow for FASD Awareness Day.

Article, Netnewsledger.com, September 6, 2011

Big Island study on fetal alcohol, drug exposure

Children’s Research Triangle found nearly half of children on the Big
Island of Hawaii were exposed to substances in the womb.

Article, Canadian Business, September 5, 2011

Fetal Alcohol Syndrome Rate Higher Among American Indians

According to the Centers for Disease Control and Prevention, the FASD
prevalence rate was found to be as high as 31 in 10,000 live births
among the American Indian community.  Young Native, Morgan Fawcett,
shares his story of living with FASD.

Article, Indian Country Today, September 5, 2011

Stay away from booze while pregnant

Healthy Babies and the Prenatal Nutrition Program of the Northwest
Territories of Canada will hold several events for FASD awareness day.

Article, Northern News Services Online, September 5, 2011

Mother uses loss to warn others of FASD danger

Brenda Reid of Canada shares the story of her son Billy’s struggle with
FASD and alcohol.

Article, Parentcentral.ca, September 5, 2011

Drinking while pregnant a tragedy

Several FASD organizations throughout Kentucky including, The Bluegrass
Regional Prevention Center will host FASD awareness day events.

Article, Kentucky.com, September 3, 2011

Stark 20/20: Preventable threats to young lives

Stark County, Ohio has seen a steady increase in cases of FASD.

Article, CantonRep.com, September, 2, 2011

Alcohol in pregnancy can harm babies

After many years of believing that FAS only affected Aboriginal
communities in Australia, it has been revealed to affect many Australian
populations.

Article, The West Australian, September 1, 2011

Pregnant drinking: Social experiment at the Minnesota State Fair

The Minnesota Organization on Fetal Alcohol Syndrome (MOFAS) recently
held a social experiment to see how people would react to a visibly
pregnant woman drinking a beer at the Minnesota State Fair.

Video, KARE 11, September 1, 2011

NOFAS

NOFAS Profile: Dr. Yasmin Senturias – Introduction

NOFAS Profile: Dr. Yasmin Senturias – FAS Diagnosis

NOFAS Vice President, Kathy Mitchell recently sat down with Dr. Yasmin
Senturias of the University of Louisville – Weisskopf Child Evaluation
Center to discuss FAS diagnosis and how Dr. Senturias became involved in
the FASD field.

CALENDAR OF EVENTS

NOFAS Weekly Roundup – Volume 2, Issue 36

September 13, 2011 by rosie  
Filed under Fetal Alcohol Spectrum Disorders (FASD)

NOFAS Weekly Roundup – Volume 2, Issue 36

The NOFAS Weekly Roundup features news articles, research, event
announcements, new materials and other highlights from around the world
of FASD. The Roundup also includes the latest news from NOFAS and a link
to the Calendar of Events page on the NOFAS website.

FASD AWARENESS DAY SPECIAL EDITION

FEATURES

FASD: The hidden disability

Thirteen-year-old Adrien Astill lives with FAS everyday and now is using
his experience to educate others about the disorder.

Article, BCLocalNews.com, September 7, 2011

Poster campaign to educate on drinking and pregnancy

The Bulkley Valley FASD Committee will launch a poster campaign for FASD
awareness in September.

Article, Interior-News.com, September 7, 2011

Raising awareness of fetal alcohol disorders

The Center for Humanistic Change and The Arc of Lehigh and Northampton
Counties are stepping up education about FASD for FASD Awareness Day.

Article, The Morning Call, September 7, 2011

State Proclaims FASD Awareness Week

The State of Pennsylvania has proclaimed September 5-9 FASD Awareness
Week.

Article, The Kittanning Paper, September 7, 2011

Avoid alcohol while pregnant

The National Organization for Foetal Alcohol Syndrome and Related
Disorders (NOFASARD) of Australia educates Australians about FASD for
International FASD Awareness Day.

Article, Parramatta Sun, September 8, 2011

‘Flash mob’ brings shopping centre to standstill to highlight alcohol
abuse

NOFAS-UK recently held several flash-mobs of ‘pregnant’ women and men to
raise awareness for FASD Awareness Day.

Article, Scotland TV, September 9, 2011

No safe amount, no safe time for alcohol during pregnancy

Eve Nadler of Canada shares her reasons for abstaining from alcohol
during her pregnancy.

Article, The Record, September 9, 2011

March aims to shine light on FASD

Members of the Norway House Cree Nation are walking to the Winnipeg
legislative building to raise awareness that FASD is not just an
aboriginal issue.

Article, Winnipeg Free Press, September 9, 2011

Utah woman with fetal alcohol syndrome strives to raise awareness

Ruth of Salt Lake City, Utah shares about her life with FASD and how she
is striving to prevent the disorder.

Article, KSL Utah, September 9, 2011

Murkowski Raises Awareness of Fetal Alcohol Syndrome to Senate
Colleagues

Senator Lisa Murkowski of Alaska introduced and passed a resolution
commemorating September 9 as International FASD Awareness Day.

Article, Indian Country Today, September 10, 2011

Mums-to-be tell of dangers of boozing while pregnant

Mums of Newport, Wales recently gathered for a pregnant pause event
hosted by NOFAS-UK to raise awareness of the dangers of consuming
alcohol while pregnant.

Article, South Wales Argus, September 10, 2011

AFFILIATES

FASD Awareness Day

NOFAS and members of its Affiliate Network held and participated in many
activities and events for FASD Awareness Day 2011.

NOFAS

NOFAS Profile: Paul Joles of Orchids FASD Services, Inc.

Paul Joles, President of the new NOFAS affiliate Orchids FASD Services,
Inc., shares about life with his daughter Kimberly, who is affected by
FAS.

Get to Know Me: My Life with FASD Interview with Chanel T.

Chanel T. of Florida shares her story of living with FASD.

CALENDAR OF EVENTS

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