NOFAS Weekly Roundup – Volume 2, Issue 13

The NOFAS Weekly Roundup features news articles, research, event

announcements, new materials and other highlights from around the world

of FASD. The Roundup also includes the latest news from NOFAS and a link

to the Calendar of Events page on the NOFAS website.

FEATURES

Wounded in the Womb: Diagnosing FASD

Continuing special coverage of the “Wounded in the Womb” series on FASD
from the Winnipeg Free Press.  This week’s articles focus on diagnosis
of FASD.

Articles, Winnipeg Free Press, March 26, 2011

National Healthy Mothers Launches Text4Baby Initiative

Text4baby is a free mobile information service designed to promote
maternal and child health.

Program, National Healthy Mothers, March 24, 2011

Teachers face huge rise in special needs

Recent research recommends that teachers receive training on special
needs, especially those that are related to prenatal alcohol exposure.

Article, London Evening Standard, March 24, 2011

Why Fetal Alcohol Spectrum Disorder Affects Some Children But Not Others

According to a new study from Northwestern University, gene variation
passed on by a mother to her son contributes to a fetus’ vulnerability
to moderate alcohol exposure.

Article, Medical News Today, March, 24, 2011

Mom’s Genetics Contributes to Fetal Alcohol Damage

Gene screening for Dio3, which controls the levels of thyroid hormone in
the brain, could help to identify women whose fetuses could be at-risk.

Podcast, Scientific American, March 23, 2011

Behavior link to mother’s drinking

A recent study from the University of Pittsburgh shows that teenagers
are significantly more likely to be aggressive if their mothers consumed
alcohol early in pregnancy.

Article, United Kingdom Press Association, March 22, 2011

Substance Using Women with FASD and FASD Prevention

Promising practices for women with FASD and substance use issues from
Deborah Rutman, PhD of the University of Victoria – School of Social
Work.

Project Summary, University of Victoria – School of Social Work, Spring
2011

CALENDAR OF EVENTS

NOFAS Weekly Roundup – Volume 2, Issue 25

The NOFAS Weekly Roundup features news articles, research, event

announcements, new materials and other highlights from around the world

of FASD. The Roundup also includes the latest news from NOFAS and a link

to the Calendar of Events page on the NOFAS website.

FEATURES

Register now for the “Improving outcomes for patients impacted by
prenatal alcohol exposure” conference!

Join the University of Wisconsin-Madison School of Medicine and Public
Health, Departments of Family Medicine and Pediatrics; the Great Lakes
FASD Regional Training Center; and St. Mary’s Hospital Continuing
Medical Education in exploring how earlier diagnosis and intervention
can help individuals affected by FASD.

Conference Announcement, University of Wisconsin-Madison, March 3, 2011

Crime and FASD: It need not be a life sentence

The second edition in the “Wounded in the Womb” special article series
on FASD features the story of a young man that turned his life around in
jail after learning about more about his FASD diagnosis.

Article, Winnipeg Free Press, March 1, 2011

Vitamin A could curb fetal-alcohol effects: Israeli research

New research by an Israeli scientist suggests vitamin A could reverse
the effects of alcohol on early embryos during critical development
periods.

Article, Vancouver Sun, March 1, 2011

New signs advertise risks of drinking while pregnant

Utah joins 22 other states in the fight to prevent FASD by requiring
that establishments that sell and serve alcohol prominently display
warning signs about alcohol use during pregnancy.

Article, Deseret News, March 2, 2011

NOFAS

NOFAS Profile: Jennifer Rice and Chris Goudy

Recently NOFAS sat down with NOFAS Virginia President, Jennifer Rice and
her son Chris Goudy.  In this interview, Chris explains how FASD has
affected his ability to complete tasks in school and his difficulties
with memorization and auditory processing. Jennifer speaks to how the
school system has worked with Chris’ disability.

NOFAS Attends 4th International Conference on FASD

Kathy Mitchell and Andy Kachor participated at the largest annual
gathering of FASD researchers, scientists, educators and other leaders
in Vancouver, British Columbia, Canada.

CALENDAR OF EVENTS

Join the Friends of NOFAS Network Today!

FAS UPDATE Volume 2, Issue 23

February 23, 2011 by rosie  
Filed under Fetal Alcohol Spectrum Disorders (FASD)

The NOFAS Weekly Roundup features news articles, research, event
announcements, new materials and other highlights from around the world
of FASD. The Roundup also includes the latest news from NOFAS and a link
to the Calendar of Events page on the NOFAS website.

FEATURES

Vote for Favorite Special Needs Memoir!

“Braided Cord – Tough Times In and Out” by Liz Kulp, a young author with
FASD, was recently selected as a finalist for ‘Favorite Special Needs
Memoir’ by Terri’s Special Children Blog on about.com.

Article, About.com, February 19, 2011

Project Step Up: Intervention to Reduce Alcohol Consumption in Youth
Exposed to Alcohol Prenatally

The Western Regional Training Center for FASDs at the Semel Institute at
UCLA is currently seeking prenatally exposed teens between ages 13-18 to
participate in a six week research study on coping with daily struggles
and alcohol use.

Research Study, Western Regional Training Center for FASDs, February 18,
2011Iowa House subcommittee approves abortion ban
<http://www.chicagotribune.com/news/chi-ap-ia-abortion-iowa,0,658952.sto
ry>

Along with banning abortions, this ban would also charge women with
endangering the fetus if consuming alcohol during pregnancy.

Article, Chicago Tribune, February 14, 2011

Alcohol free mouthwash significantly reduced preterm births in study

A recent study shows that pregnant women that use alcohol free
antibacterial mouthwash have lower chances of preterm birth.

Article, Examiner,com, February 13, 2011

The Utah State Legislature is currently considering House Bill 216 that
states women with addiction issues should be required to receive
treatment after giving birth or they will not be reunited with their
child.

Article, Salt Lake Tribune, February 11, 2011

NOFAS

NOFAS plans annual Leadership Awards Benefit for June 21, 2011

The annual NOFAS awards reception will be held Tuesday evening, June 21,
in Washington, D.C. NOFAS members and FASD advocates will join Senator
Lisa Murkowski and founding NOFAS members Tom and Linda Daschle to honor
the leaders in the areas of science and advocacy.

CALENDAR OF EVENTS

NOFAS Weekly Roundup – Volume 2, Issue 22

February 15, 2011 by rosie  
Filed under Fetal Alcohol Spectrum Disorders (FASD)

The NOFAS Weekly Roundup features news articles, research, event announcements,
new materials and other highlights from around the world of FASD. The Roundup
also includes the latest news from NOFAS and a link to the Calendar of Events
page on the NOFAS website.

FEATURES

Register Now for “FASD: A Hidden Disability”

Register today for the The Arc’s webinar “FASD: A Hidden Disability” to be held
on February 24, 2011 from 2-4 PM Eastern Time.  This presentation includes a
broad overview of the consequences of prenatal alcohol exposure through the
lifespan from leading FASD experts.  To register, contact Leigh Ann Davis at
ldavis@thearc.org <mailto:ldavis@thearc.org>  or call 202.534.3727.

Webinar, The Arc, February 14, 2011

Australian Panel Recommends Warning Labels for Alcohol
An advisory panel has recommended that the Australian government put warning
labels on alcoholic beverages to support responsible choices, including
abstaining from alcohol consumption during pregnancy.

Article, JoinTogether.org, February 9, 2011

Under-reporting of FASD: an analysis of hospital episode statistics

Recent study from the United Kingdom on the reporting of FASD in hospital
admissions.

Article, MBC Pediatrics, February 8, 2011

New Dietary Guidelines on Alcohol Keep Daily Drinking Yardstick

New dietary guidelines have been recommended by the Department of Health and
Human Services for safe alcohol consumption for men and women.

Article, JoinTogether.org, February 8, 2011

NOFAS Currently Seeks FASD Organizations to Join Affiliate Network

NOFAS is currently seeking FASD organizations to join its Affiliate Network.
All organizations should be registered as a 501(c)(3) non-profit organizations
or working toward becoming incorporated organizations.

CALENDAR OF EVENTS

Young Author Delivers Important Message About Living With Her Brother Affected by FASD

November 10, 2009 by rosie  
Filed under Fetal Alcohol Spectrum Disorders (FASD)

Read the press release below about this young author’s upcoming book signing in New Jersey.

ATLANTA, Georgia (November 1st, 2009) ? Morasha Winokur’s compelling book, “My Invisible World” (ISBN 978-0-9842007-0-2) shares with tween-humor and bitter-sweet honesty her young life as a sibling of a brother with special needs. Adopted internationally, both Morasha and her non-biological brother, Iyal, leave Russia together as fourteen-month-old infants when their new parents bring them home to Roswell, Georgia. A few years later, the family is informed that Iyal had been exposed to prenatal alcohol resulting in fetal alcohol syndrome (FAS). This life long birth defect leaves an individual with cognitive, physical, neurological and behavioral impairment.  FASDs (fetal alcohol spectrum disorders) are the leading known preventable cause of intellectually disability. It may be the most undiagnosed or misdiagnosed developmental disability of our time, as up to 1 out of 100 newborns, “tens of thousands of babies each year” in the U.S. are affected by prenatal alcohol exposure. And yet 1 out of 8 pregnant women still consume alcohol. (CDC 2009)

Morasha clearly explains to kids and adults alike, through anecdotes and philosophy, how down right “annoying” it can be to navigate her seemingly impossible world. FASDs are 100% preventable, but 0% curable. She asks, “When will it stop?  Not soon enough as far as I’m concerned.” With alcohol attached to this diagnosis…shame and blame build barriers to compassion and understanding for both the birth mother and the baby born to her. Reading Morasha’s book may provide a breakthrough to greater understanding and acceptance of this cultural undertow.  Shakespeare said, “Age is counted not by calendar years but by wisdom.” An eleven-year makes clear how we must support the individual and the family dealing with the unimaginable disability we don’t want to see.

Oh, you may want to check this out…

Morasha was just featured on CNN.com’s program, “Young People Who Rock”!  You can see her live interview

Local Book Signing Information:
Where: Borders in Watchung Square  1511 Highway 22 Watchung NJ 07069
When:  Saturday, November 28th 2:00 – 4:00 p.m.
Contact:
Donnie Kanter Winokur – 770-856-5424 TheChancerChronicles@gmail.com

Press Kit Information

History of FASD Updates

A separate page has been created to host the entire series of postings called, History of FASD.

Please check this page for any changes or updates that are made by the author. It is on the right side in the sidebar.

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