Methamphetamine Damages Fetal Brains

March 24, 2010 by deborah  
Filed under Prenatal Issues

A small study has found that babies exposed to methamphetamine and alcohol before birth have smaller caudate nucleus regions in the brain than non-exposed children or children exposed to alcohol only in the womb, HealthDay News reported March 17.

Researchers compared brain scans of 13 children exposed to alcohol before birth, 21 children exposed to meth and alcohol, and 27 children who were not exposed to either drug.

The caudite nucleus assists in learning, memory, motor control and motivation.

“We know that alcohol exposure is toxic to the developing fetus and can result in lifelong brain, cognitive and behavioral problems,” said researcher Elizabeth Sowell of the University of California at Los Angeles. “In this study, we show that the effects of prenatal meth exposure, or the combination of meth and alcohol exposure, may actually be worse. Our findings stress the importance of drug abuse treatment for pregnant women.”

The findings were published March 17, 2010 in the Journal of Neuroscience.

Subscribe to the Monthly Newsletter of the External Partners Group

May 7, 2009 by rosie  
Filed under Resources

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EPG Online - A Publication of the External Partners Group

May 2009
In This Issue

Upcoming Events
  1. A Note from the Executive Committee: Keeping NCBDDD Programs, Disability Issues in the Policy Spotlight
  2. A Note from Our Friends at NCBDDD: Responding to the H1N1 Flu Outbreak
  3. CDC’s New Products on Fetal Alcohol Spectrum Disorders
  4. Author-Activist Quinn Bradlee Inspires New Dialogue on Learning Disabilities
  5. “Period of Purple Crying” Program Prevents Shaken Baby Syndrome
  6. New Web Resource from the Spina Bifida Association
  7. Study: Dentists Crucial to Diagnosing & Treating Sleep-Disordered Breathing in Children with Down Syndrome
  8. Arc of the United States Seeks Development Associate

“March for Babies”
with the March of Dimes

Events are underway!

Mental Health America Centennial Conference
June 10-13, 2009
Washington, DC

Fifth International Medical & Scientific Symposium on Tourette Syndrome
June 11-13, 2009
New York, NY

  1. A Note from the Executive Committee: Keeping NCBDDD Programs, Disability Issues in the Policy Spotlight

The EPG executive committee continues to monitor activities concerning federal legislation and appropriations related to NCBDDD and its programs. We have been working to assure that as Congress begins to consider the issue of health disparities, disabilities and health are also a focus of the policy debates. We encourage member organizations to utliize the briefing materials on EPG budget priorities for NCBDDD when working with members of Congress and their staff, and to bring any new issues related to broad NCBDDD priorities to our attention. As always, feel free to contact me at rkirby@health.usf.edu.

Russell Kirby, PhD
EPG Executive Committee Chair

  1. A Note from Our Friends at NCBDDD: Responding to the H1N1 Flu Outbreak

CDC continues to take aggressive action to respond to an expanding outbreak caused by novel H1N1 flu. CDC continues to issue and update interim guidance daily in response to the rapidly evolving situation. Please visit www.cdc.gov/h1n1flu for the latest information.

  1. CDC’s New Products on Fetal Alcohol Spectrum Disorders

CDC has introduced several new products that guide in the identification, prevention and management of fetal alcohol spectrum disorders (FASDs). Among the materials is a curriculum development guide for use with medical and allied health students and practitioners. Also included are two reports from the National Task Force on Fetal Alcohol Syndrome and Fetal Alcohol Effect with recommendations on promoting and improving effective prevention strategies to reduce alcohol use and alcohol-exposed pregnancies, and on improving and expanding early identification, diagnostic services and quality research efforts. Prenatal alcohol exposure is one of the leading preventable causes of birth defects and developmental disabilities. For more information about these CDC products, go to www.cdc.gov/fasd.

  1. Author-Activist Quinn Bradlee Inspires New Dialogue on Learning Disabilities

A new memoir from Quinn Bradlee is drawing national attention to learning disabilities (LD). Bradlee, author of A Different Life: Growing Up Learning Disabled & Other Adventures, writes about living with LD and is using his platform to raise awareness and to advance the public dialogue about LD and other disabilities. Through recent appearances, including an interview on ABC’s “Good Morning America,” the Washington, DC resident and HealthCentral staffer is sharing his message of overcoming disabilities through humor. And his website is fast becoming a popular resource and networking hub for the LD community. To learn more, visit www.friendsofquinn.com.

  1. “Period of Purple Crying” Program Prevents Shaken Baby Syndrome

Approximately 1,300 American infants are hospitalized or die from shaken baby syndrome each year. Eighty percent of the children who survive suffer brain injury, fractures, paralysis, blindness, deafness and other disabilities. But new research shows that education is an effective tool for preventing shaken baby syndrome. To learn more about the “Period of Purple Crying” program developed by the National Center on Shaken Baby Syndrome, go to www.dontshake.org. And for an abstract from the March 2009 issue of the journal Pediatrics, which looks at the program’s impact on a cohort of over 2,700 mothers of newborns, click here.

  1. New Web Resource from the Spina Bifida Association

The Spina Bifida Association (SBA) has developed a new online Resource Directory highlighting many of the topics handled by the National Resource Center. The new directory’s top 10 topics include: Prenatal issues, Everyday transportation and travel, Camps, Financial need, Bowel and bladder needs and care, Orthopedic needs and care, Neurologic needs and care, skin health, learning and education, and living in the community. The information contained in these resources is periodically reviewed and updated. To check out the new Resource Directory, visit SBA’s homepage at www.spinabifidaassociation.org. To recommend a resource or an update, send email to sbaa@sbaa.org.

  1. Study: Dentists Crucial to Diagnosing & Treating Sleep-Disordered Breathing in Children with Down Syndrome

A new study finds that dentists play a crucial role in recognizing and treating sleep-disordered breathing problems in children with Down syndrome. The report, published in the March 2009 issue of the Journal of the American Dental Association, finds that although sleep-disordered breathing occurs in 50 to 80 percent of children with Down syndrome, it is often slow to be recognized, diagnosed and effectively treated. The study’s authors recommend that oral health professionals recognize the impact of sleep impairment and the need for diagnostic testing, and that they collaborate with a physician who is a sleep specialist and with a child’s primary physician when evaluating and selecting the most effective treatment for children who have Down syndrome and sleep-disordered breathing. For the abstract, click here.

  1. Arc of the United States Seeks Development Associate

The Arc of the United States, the nation’s oldest and largest organization serving children and adults with intellectual and developmental disabilities, is accepting applicants for the position of Development Associate in its Maryland office. The individual in this position is responsible for gift processing in Raiser’s Edge, including communications follow-up, assisting with the direct response program and development reporting, security exhibitors for convention, conducting research, and supporting direct mail and other fundraising projects and donor relations activities. The position requires three to five years of fundraising experience. For more details, click here.

Sources:

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The External Partners Group is a coalition of government and private sector participants who work together to enhance the mission and activities of the National Center on Birth Defects and Developmental Disabilities (NCBDDD) in promoting child development; preventing birth defects and developmental disorders/disabilities; and enhancing the quality of life and preventing secondary conditions among people who are living with mental or physical disabilities, or a combination thereof.




January is National Birth Defects Prevention Month!

January 9, 2009 by deborah  
Filed under Childhood Issues

January is National Birth Defects Prevention Month.  The External Partners of the National Center of Birth Defects and Developmental Disabilities describe below some events that are taking place during this month in their January newsletter:

  1. A Note from Our Friends at NCBDDD: Folic Acid Resources & Research

    January 5-11 is National Folic Acid Awareness Week. In observance, CDC has developed several promotional tools, sharing the message that consuming 400 mcg of folic acid daily, before and during early pregnancy, can help reduce a woman’s risk of having a pregnancy affected by a serious birth defect of the spine or brain. CDC encourages you to share these resources with your colleagues, family and friends: 1) A web feature article, “Women Need 400 Micrograms of Folic Acid Every Day,” 2) e-cards in English and in Spanish and 3) podcasts in English and in Spanish. Additionally, NCBDDD has published a study on the effects of folic acid fortification of corn masa flour. Click here to view the press release on this report.

  2. A Note from the Executive Committee: New Year, New Challenges & Opportunities

    Greetings and best wishes from the Executive Committee. The year 2009 will be very exciting, posing many challenges that may disguise opportunities, as well. The EC met in mid-December, and is finalizing a one-page document for use in education and advocacy for developmental disabilities, birth defects and disabilities and health in the new Congressional session; this will be available shortly. Let’s all remember that in these difficult times, it is the constituencies served by NCBDDD who need us to be persistently bringing their issues to the table for discussion and action, and collectively our voice will be ever more powerful.

  3. APHA Invites Nominations for 2009 Awards in Public Health

    Do you know an outstanding professional in the public health field? If so, the American Public Health Association (APHA) encourages you to submit a nomination for its 2009 awards program, which recognizes individuals for their achievements in, support for and contributions to public health. The awards will be presented at the APHA Annual Meeting and Expo in Philadelphia, November 7-11, 2009. Nominations are due by April 17. For more information, visit www.apha.org/about/awards.

  4. NBDPN Marks National Birth Defects Prevention Month

    To mark January as Birth Defects Prevention Month, the National Birth Defects Prevention Network (NBDPN) has developed free materials available online, including prevention pamphlets and posters in both English and Spanish, fact sheets, proclamations and same press releases, links to resources on the Internet, and more. Each year NBDPN selects an area of focus, in an effort to increase awareness on a specific issue and to spark prevention activity across the country. This year’s focus is “Obesity Prevention and Weight Management – Before, During, and After Pregnancy.” NBDPN is sharing the message that obesity has been identified as a leading public health concern in the US and can be associated with birth defects such as heart, neural tube and limb defects, as well as an increased risk of pregnancy complications. For more information and to access the free tools from NBDPN, click here.

  5. ’80s Heavy Metal Star Dee Snyder: Honorary Chairman of “Bikers for Babies” Campaign

    On December 22, March of Dimes President Dr. Jennifer Howse joined Dee Snider, Honorary Chairman of March of Dimes “Bikers for Babies” and front man for the 1980s heavy metal band Twisted Sister, to ring the opening bell at the New York Stock Exchange to help raise awareness of the Bikers for Babies mission. For Snyder, the cause is personal. Two of his children were born prematurely. Now he’s using his celebrity to help babies be born healthy. For more about the Bikers for Babies campaign, go to www.bikersforbabies.org.

  6. The Arc Issues Policy Recommendations for Incoming Obama Administration

    The Arc of the United States has issued a set of recommendations to President-Elect Obama’s transition team on policies affecting children and adults with intellectual disabilities and their families. Recommendations cover four main policy areas of concern, including Medicaid, family support, economic recovery, and key federal agency leadership. To view the complete recommendations released by The Arc, click here.

  7. January 18: Disability Power & Pride Inaugural Ball in Washington, DC

    On January 18, United Cerebral Palsy and its partners will host the first ever Disability Power & Pride Inaugural Ball at the National Press Club in Washington, DC. With a theme of “Life Without Limits,” the disability community will welcome President-Elect Obama and Vice President-Elect Biden, celebrate past successes and look forward to future progress in policy and advocacy. The event will draw members of the incoming administration and members of Congress, in addition to hundreds of disability leaders, advocates and allies. RSVP by January 9. For more information, visit www.disabilitypowerandpride.org.

Care About Children, Birth Defects and Disabilities? Subscribe to External Partners Group Newsletter

Subscribe today to the External Partners Group Newsletter. Why? Because their mission, as stated on their site is as follows:

The External Partners Group is a coalition of government and private sector participants who work together to enhance the mission and activities of the National Center on Birth Defects and Developmental Disabilities (NCBDDD) in promoting child development; preventing birth defects and developmental disorders/disabilities; and enhancing the quality of life and preventing secondary conditions among people who are living with mental or physical disabilities, or a combination thereof.

So if you are ready to subscribe and get their excellent publications click here.

What’s Happening at CDC?

Want to know what’s going on around the country involving Fetal Alcohol Spectrum Disorders (FASD)?  Sponsored by the Centers for Disease Control and Prevention, National Center on Birth Defects and Developmental Disabilities, this website  is a comprehensive resource that provides a wide range of FASD information.  Topics include information about state based programs, surveillance data, research articles, guidelines for referral and diagnosis, interventions, curriculum, brochures and fact sheets.

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