NY Times: “World of Grief and Doubt After an Adoptee’s Death” This article tells the story of a family that adopted Max, a boy from a Russian orphanage affected by FASD. Max had many developmental and behavioral problems. His death at age three was the subject of immense media attention, legal investigation, and political debate.
Susie”s Story – Wants to Tell the World about FASD This is a profile of Susie Schule, 42 and living with FASD. Susie “just wants people to know that it is not okay for expectant mothers to drink alcohol of any kind, in any amount, at any point in their pregnancy.” – The Labradorian
Tanya”s Story – Diagnosed with an FASD at age 36 “Tanya found out 11 years ago she falls under the umbrella of FASD. She was 36 when she was diagnosed. She has three college degrees… She’s originally from Newfoundland, but now lives in Ontario and works for the federal government. She recently became an FASD educator.” – The Telegram
FASD and Nutrition – MotherToBaby Blog Lauren Bartell Weiss, PhD, a researcher at UC San Diego, writes about nutrition’s potential role in FASD prevention.
FASD Segment on BronxNet TV Carmen Alvira, Assistant Director of Palladia INC and Laena Orkin, Program Manager and Alcohol Educator for the Partnership for a Healthier New York discuss their work to raise awareness of FASD.
FASD Awareness Walk in Fort Simpson, Canada “More than 60 people slowly walked down Fort Simpson”s main street on Aug. 26 to raise awareness about and show support for people living with FASD.” – Northern News Service
Profile of FASD Program in Ontario, Canada Maureen Parkes serves as FASD Coordinator for the NorWest Community Health Centre, which “provides the only monthly diagnostic clinic in northwestern Ontario.” – Wawatay News
: WHO guidelines for the identification and management of substance use and substance use disorders in pregnancy.
Research and Updates
Light Drinking in Pregnancy Decreases in Australia A report in Australia says that, “For women who say they drank alcohol at any stage of their pregnancy, the figure falls from 53 per cent in 2007 to 35 per cent in 2011.” – Herald Sun
Studies Examine Fetal Alcohol Syndrome in South Africa “Two recently published studies report prevalence data about FASD in South Africa and find that negative consequences of prenatal exposure to alcohol may be lessened if a child is provided with adequate nutrition and appropriate cognitive and behavioral stimulation in his or her first seven years of life.” – UNM Today
Submit Comments to DOT on Mobility Needs of Persons with Disabilities On August 27, the U.S. Department of Transportation (DOT) invited public comments on its strategic plan. Deadline for submission of comments is September 6.
SAMHSA Seeks Public Comments on Draft National Behavioral Health Quality Framework Substance Abuse and Mental Health Services Administration (SAMHSA) August 30 requested comments – due to SAMHSA on September 17.
NOFAS Fundraiser: International Gala & Maternity Fashion Show September 12, 2013. “Smart Moms, Healthy Babies” International Gala celebration of mothers and maternity fashions at the Embassy of Italy in Washington, D.C. Guests from Congressional and diplomatic delegations will join corporate leaders and other public and private sector guests for a reception, silent auction, dinner and parade of maternity fashions and musical entertainment. The event will cap the week of activities related to International FASD Awareness Day (September 9 annually).
Webinar: Creating Resiliency in Families Living with FASD: Moving from Grief to Empowerment September 4, 2013. 2:00 PM – 3:00 PM EST. Kathy Mitchell, Vice President and National Spokesperson for NOFAS “will review some of the behavioral characteristics of individuals with FASD through the lifespan and discuss how families are also affected through the lifespan. She will review the stages of denial and grief often experienced by family members and will focus on the importance of self-care for parents and caretakers.”
Webinar: FASD Awareness September 9, 2013. 2:00 PM – 3:30 PM. Meeting Number: 650 055 271 – Meeting Password: 73982737 – Free, hosted by the SAMHSA FASD Center for Excellence. Speakers include: Dr. Susan Astley (University of Washington), Dr. Margaret Ellen Mattson (SAMHSA’s Center for Behavioral Health Statistics and Quality (CBHSQ), Jamie Reinebold (Memorial Hospital of South Bend), Paulette Romashko (ARC Community Services), Helen Weinstein (The Erie County Council for the Prevention of Alcohol and Substance Abuse, Inc.), Laura Nagle (Kentucky State FASD Coordinator).
Webinar: Beyond the Diagnosis: Effective Interventions for Children and Adolescents with FASD September 9, 2013. 2:00 PM – 3:30 PM EST. “This presentation will share the latest research on FASD interventions, as well as practical parenting and teaching tips learned from families and research colleagues. This will include information on early intervention, practical sleep/feeding/sensory strategies, positive behavior supports, help for self-regulation and executive functions, medications, educational approaches, and adolescent transitions.”
Living with FASD 12-day Teleseminar September 9-20, 2013. NOFAS Spokesperson Kathy Mitchell has an interview on Tuesday Sept. 10th at 10:00 am PDT. “The purpose of this telesummit is to provide families with information about practical strategies to implement at home, based on the newest FASD research. Speakers have been specially selected because they have experience on a professional level and also have first-hand experience raising children with FASD.”
Arizona FASD Awareness Day September 9, 2013. This is a free public event to raise awareness about FASD. The event includes, Children’s Crafts, Readings, Interactive Skits, Prizes, Refreshments, Information, and a Butterfly Parade.
Michigan FASD Task Force Conference September 12, 2013. Ann Arbor, Michigan. “Please join us in commemorating the 40th anniversary of the first article to describe Fetal Alcohol Syndrome co-authored by our Keynote Speaker: Kenneth Lyons Jones, MD, University of California, San Diego. Additional Speakers Include: Mark A. Sloane, DO, Children’s Trauma Assessment Center, Western Michigan University. Sally Burton-Hoyle, Ph.D., Autism Collaborative Center, Eastern Michigan University. Dan Dubovsky, MSW, LSW, Substance Abuse and Mental Health Services Administration, FASD Center for Excellence.”
European Parliament in Brussels on FASD September 17, 2013. There will be a policy debate ‘Protecting the unborn baby from alcohol’ that will take place at the European Parliament (Brussels) on Tuesday, the 17th of September 2013 from 10:00 AM to 1:00 PM.
Changing the Future of Fetal Alcohol Syndrome Together September 18, 2013. San Diego, CA. NOFAS Spokesperson Kathy Mitchell will present. “Join Kenneth Lyons Jones, MD, one of two researchers whodiscovered FAS in 1973 as he and his special guests tell their stories of how FAS has affected their lives, what we know aboutthe disorder today, and what needs to change in order to preventprenatal alcohol exposure from continuing to affect an alarming 1in 100 people”
Conference on Legal Issues of FASD September 18 – 20. Edmonton, Alberta, Canada. “This conference is a three-day juried hearing of evidence and scientific findings that allows for the engagement and collaboration of citizens and decision makers in government and the justice system in addressing a specific set of key questions on legal issues related to FASD.”
First International Conference on Prevention of FASD September 23-25, 2013. Edmonton, Alberta, Canada. “This is the first international conference to address the primary, secondary and tertiary prevention of FASD… The conference will serve as an international knowledge exchange and networking forum for those interested in FASD prevention, bringing together key experts from around the globe.”
40th Anniversary FASD Summit Sept 26-27,2013. Atlantic City, NJ. Opening keynote is Dr. Ken Jones. Other speakers include: Drs. Luther Robinson, Grace Chang, Jennifer Thomas, Claire Coles and Natalie Novick-Brown. Kathy Mitchell is the moderator for a family panel.
5th Annual Illinois FASD Conference October 4, 2013. Glen Ellyn, IL. Opening keynote is Dr. Mary DeJoseph. Other speakers include: Emily Travis, Glendean Sisk, Barbara Brooks, Ajeet Charate and Melissa Kozlowski.
Balancing the Scales of Justice for Children and Adults with Disabilities October 10-11, 2013. Denver, CO. “The Conference”s primary target audience is individuals who work in disciplines that investigate and prosecute crimes against children and adults with intellectual and developmental disabilities (I/DD), as well as those who support those victims.”