Students teach FASD lessons in Monte Vista, CO “For several months, the young men and women of the Byron Syring DELTA Center, part of the Monte Vista School District, have been touring the Valley to do what they can to prevent mothers from drinking alcohol when with child. They have shared the tragic story of children fallen victim to Fetal Alcohol Spectrum Disorders (FASD) with their peers, college students, health professionals and the community at large with hope the constant sad endings will make an impression and stop babies from being born with a multitude of life lasting birth defects.”
British FASD Advocate wins award, thanked by Prime Minister “Prime Minister David Cameron… has named Maria Catterick from Stockton the latest winner of his Big Society award for her dedicated and selfless support to young people. Over the past nine years she has single-handedly taken in and cared for 26 children which has led to her launching the Foetal Alcohol Spectrum Disorder (FASD) Network which provides advice and campaigns for awareness of the condition caused by pregnant mothers who drink alcohol.”
Research
Events
Webinar: FASD Intervention Strategies – Part I: A Global Approach to Interventions Appropriate to a Person with an FASD May 23, 2013. 1:00 PM-2:30 PM EST. “If it is accurate that a person with an FASD will always need an external executive function (per Sterling Clarren) it would behoove caregivers and service providers alike to be aware of intervention strategies that apply to every individual with an FASD and every situation relative to that individual. This webinar offers exactly that. Dr. Susan Doctor will discuss strategies that she calls “global” intervention strategies. She will spell out the rationale for and value of each global strategy as applied to the provision of appropriate supports for the individual with an FASD.”
Event: NAMI Walks in Baltimore, MD May 18, 2013. 11:00 AM. Rash Field at Baltimore’s Inner Harbor. “NAMIWalks is the largest mental health education and fundraising effort in America. NAMIWalks brings together thousands of individuals and supporters to celebrate mental illness recovery, to honor those who have lost their lives to mental illness and to help raise funds, combat stigma and promote awareness.”
3rd International SAF France 2013 Symposium May 30 & 31, 2013. Cité Internationale Universitaire of Paris. The theme chosen this year is “Fetal Alcohol Spectrum Disorder : Prevention, Diagnosis and Intervention.” The objective is to mobilize the key players from various departments such as, Health, Social, Adoption, Education and Justice. The days will be moderated by the best national and international specialists, with a simultaneous French-English translation. Spaces are limited so consider registering. ?The pre-program, the call for papers and posters as well as the registration form are available on the website.
Webinar: FASD Intervention Strategies – Part II: The Hope is in the Interventions: A Comprehensive Model of Hope June 20, 2013. 1:00 PM-2:30PM EST. “Here you will learn about a comprehensive model that can be utilized when in personal or professional relationship with an individual with an FASD. There are three types of strategies that will be discussed. The first is Individual Interventions – strategies to assist caregivers and service providers relative to the life circumstances of that individual. The second type is Dynamic Case Management – a method of a team approach to case management that can better assist the person with an FASD. Lastly will be the discussion of Policy Issues that can either assist or hinder the provision of appropriate supports. Remember, the hope is in the interventions!
Wine During Pregnancy – NOFAS Responds to Message Board
Watch the Video
NOFAS Spokesperson Kathy Mitchell responds to comments expressing support for wine use during pregnancy that were posted on a message board on TheBump.com, a popular pregnancy website.
FEATURES
Community
Profile of Elizabeth Parra Dang of CDC’s FASD Prevention Team “Elizabeth ParraDang, MPH, [is] a behavioral scientist in the National Center on Birth Defects and Developmental Disabilities, and the Employee of the Month for April 2013. Dang is with the CDC Fetal Alcohol Syndrome Prevention Team and has been with the team for 12 years this summer… Dang said. “…I am honored to coordinate the FASD Regional Training Centers which provide trainings to medical and allied health students and practitioners on the prevention, identification, and treatment of FASDs, as well as projects that we have had over the years and currently with the American Academy of Pediatrics, the American College of Obstetricians and Gynecologists, and the National Organization on Fetal Alcohol Syndrome (NOFAS).”
Russia’s orphans: Government takes custody of children when parents can’t cope “Children in Russian orphanages are almost certain to have at least one disability. The disabilities can be congenital or related to alcohol consumption by the mother during pregnancy — or they have arisen because of the loss of emotional contact that comes with life in a state orphanage…A study of orphans in the Murmansk region [of Russia] in 2007, led by Laurie Miller of the Tufts Medical Center, found that 60 to 70 percent of the children had signs of fetal alcohol syndrome.” From Washington Post.
Video: Calgary man living with FASD speaks out about his struggles This video from a Calgary, CA community TV station profiles Myles Himmelreich, who lives with FASD. The video also features Erin Palashniuk of the Calgary Fetal Alcohol Network.
Research
Brain Scans Can Predict Which Alcoholics Are Most Likely to Relapse “The study, which was published in JAMA Psychiatry, found that those with elevated activity in a region called the ventromedial prefrontal cortex (vmPFC) even while they were at rest were eight times more likely to drink again within 90 days than those whose vmPFC was calmer when they were feeling relaxed.” From TIME.
Study Finds Women Who Drink Alcohol Before Pregnancy Less Likely To Take Multivitamins “Researchers from the University of California, San Diego Department of Pediatrics and Rady Children’s Hospital-San Diego, a research affiliate of UC San Diego School of Medicine, have found a link between multivitamin use and alcohol consumption before pregnancy, uncovering a need for education about the importance of vitamin supplementation, particularly among women who drink alcohol during their childbearing years.” From Health Canal.
Events
Free Online Training – FASD Basics with MOFAS May 9, 2013. 12:00pm-1:00pm. “This free online training with a MOFAS presenter is for anyone interested in learning more about Fetal Alcohol Spectrum Disorders (FASD) including parents, professionals and educators. Participants will gain a basic understanding of FASD, explore how alcohol affects the developing brain and discuss strategies for helping someone who is affected by an FASD.”
Event: NAMI Walks in Baltimore, MD May 18, 2013. 11:00 AM. Rash Field at Baltimore’s Inner Harbor. “NAMIWalks is the largest mental health education and fundraising effort in America. NAMIWalks brings together thousands of individuals and supporters to celebrate mental illness recovery, to honor those who have lost their lives to mental illness and to help raise funds, combat stigma and promote awareness.”
Event: Recovery Walks September 21, 2013. “Every September, the Substance Abuse and Mental Health Services Administration sponsors National Recovery Month to increase awareness and understanding of mental and/or substance use disorders. The 2013 Recovery Month theme, “Join the Voices for Recovery: Together on Pathways to Wellness,” represents the many ways that people can prevent behavioral health issues, seek treatment, and sustain recovery as part of a commitment to living a mentally, physically, emotionally, and spiritually healthy life.”
3rd International SAF France 2013 Symposium May 30 & 31, 2013. Cité Internationale Universitaire of Paris. The theme chosen this year is “Fetal Alcohol Spectrum Disorder : Prevention, Diagnosis and Intervention.” The objective is to mobilize the key players from various departments such as, Health, Social, Adoption, Education and Justice. The days will be moderated by the best national and international specialists, with a simultaneous French-English translation. Spaces are limited so consider registering. ?The pre-program, the call for papers and posters as well as the registration form are available on the website.
NOFAS Updates
NOFAS on Pinterest Follow NOFAS on our new Pinterest page for image sharing. This is a great opportunity to see and share images, such as FASD awareness graphics, fact sheets, videos of people with FASD, and more.
Warrior Mom Pendant for Mother’s Day! Looking for a Mother’s Day gift? Consider a beautiful pendant featuring the NOFAS Circle of Hope “Warrior Mom” logo. It comes in silver or gold with a matching 18? or 24? chain. The pendant depicts a proud and fearless woman surrounded by these words; Respect, Nurturing, Intuitive, and Empowered. It’s the perfect gift for mothers or expectant mothers of any age, and can be ordered here.

Community
Creating a Circle of Hope to Prevent FASD by Kathy Mitchell NOFAS Vice-President Kathy Mitchell wrote this piece on the Circle of Hope for Join Together, a collaboration of the Boston University School of Public Health and The Partnership at Drugfree.org. She writes about founding the Circle of Hope (COH), a mentoring program for birth mothers of children with FASD. The COH mission is “to increase understanding and support, and strengthen recovery, for women who drank during pregnancy, and their families.”
Can a Restaurant Refuse to Serve Alcohol to a Pregnant Woman? This post on Restaurants.com discusses the legal issues of refusing service to pregnant women. The post states, “Restaurants are private facilities and, as such, have the right, and ability, to enforce any policy they wish with regard to alcohol. This means that restaurants absolutely have the right to make it a policy not to serve alcohol to pregnant women. Unfortunately, this does not negate a pregnant woman’s rights to fair and equal service, and failure to serve a woman when she wishes to order drinks can lead to lawsuits.”
Video: Financial Literacy for Individuals with FASD This session is presented by the government of Alberta, Canada. It examines the financial literacy training needed by individuals with FASD.
Research
First-Ever Nationwide Survey Documents Dramatic Improvements in All Areas of Life For People In Recovery From Addiction This survey is released by Faces & Voices of Recovery. “There are over 23 million Americans in recovery from addiction in the US. The dramatic improvements associated with recovery affected all areas of life including a ten-fold decrease in involvement with the criminal justice system and use of costly emergency room departments and a 50 percent increase in participation in family activities and in paying taxes compared with their lives in active addiction. Yet, discriminatory practices in housing, employment, health insurance coverage and elsewhere remain tremendous barriers to recovery.”
Associations Between Multivitamin Supplement Use and Alcohol Consumption Before Pregnancy: Pregnancy Risk Assessment Monitoring System, 2004 to 2008 This research is published in Alcoholism: Clinical and Experimental Research. “This study explored associations between periconceptional alcohol use and multivitamin supplementation use. Weighted multivariable logistic regression was used to explore associations, adjusting for maternal education, maternal ethnicity, maternal age, household income, and parity.”
Events
Event: FASD: Best Practices in the Last Frontier. May 22-24, 2013. Anchorage, Alaska. The Arctic FASD Regional Training Center and the University of Alaska Anchorage Center for Behavioral Health Research and Services invites you to attend the 2013 conference on FASDs. They are looking for additional presenters. “This conference is designed for a wide variety of health, allied health, education, social, and human service professionals and providers, as well as the learning and networking needs of individuals with FASD and their families, and the professionals working with them.”
Event: 3rd International SAF France 2013 Symposium May 30 & 31, 2013. Cité Internationale Universitaire of Paris. The theme chosen this year is “Fetal Alcohol Spectrum Disorder : Prevention, Diagnosis and Intervention.” The objective is to mobilize the key players from various departments such as, Health, Social, Adoption, Education and Justice. The days will be moderated by the best national and international specialists, with a simultaneous French-English translation. Spaces are limited so consider registering. ?The pre-program, the call for papers and posters as well as the registration form are available on the website.
Webinar: Adults with Intellectual and Developmental Disabilities and Dementia; Assessment and Healthcare Practices May 15, 2013. 2:00 PM – 3:00 PM EST. “Adults with Intellectual and Developmental Disabilities are aging and living longer than ever. Decline in their daily function with the possibility of developing dementia increases with age, especially in adults with Down syndrome. Seth Keller, MD Immediate Past President of the AADMD and Co-Chair of the National Task Group on Intellectual Disabilities and Dementia Practices will review how changes in function can be assessed so that an accurate and early diagnosis of dementia can be determined.”
NOFAS Responses
Response to ‘Light Drinking’ Research NOFAS responds to a study from the International Journal of Obstetrics and Gynaecology (BJOG) that has been widely reported in the media as showing that light drinking is not harmful during pregnancy. The research was supported by University College, London and is the latest effort, in part, to create an evidence-base to support the “light” consumption of alcohol during pregnancy and influence public opinion on the subject.
Response to “Dear Abby” Advice on Alcohol Screening A question and answer about a doctor/patient discussion of alcohol use was published in the Dear Abby column. The question asked, in part: “What is the correct response when asked at a doctor’s office or hospital if you drink? I drink socially, maybe once a month. Should I say yes?” Abby responded, calling this amount of drinking “practically negligible.” Read the full response from NOFAS.
Community
People with Intellectual Disabilities and Sexual Violence “April is Sexual Assault Awareness Month and April 21, 2013 begins National Crime Victim’s Rights Week. People with disabilities face a disproportionate amount of sexual trauma. The rate of sexual abuse and assault is twice that is faced by people without disabilities. Those with cognitive disabilities face the greatest risk of all. Find out more about sexual violence and people with intellectual and developmental disabilities and the effort to raise awareness about sexual violence during April.”
Webinar Archive – FASD: What You Need to Know with Kathy Mitchell This is the archived video of NOFAS’ Kathy Mithcell’s webinar. You can access the video for free by entering your name and email. The webinar is an overview about FASD through the lifespan, addressing both FASD prevention and treatment.
Response to Light Drinking Study from CanFASD This is a response from Jocelyn Cook, Executive Director of the Canada Fetal Alcohol Spectrum Disorder Research Network (CanFASD), Canada’s first comprehensive national research network on FASD.
Research
Study: Aerobic Exercise May Mitigate Alcohol’s Brain Damaging Effects “Aerobic exercise was associated with less damage to specific parts of the brain’s white matter, though the researchers could not say how much exercise would balance a night on the town. They reported their findings in an online preview of publication in September’s journal Alcoholism: Clinical and Experimental Research.” – Los Angeles Times
Events
NOFAS Training for Addiction Health Professionals NOFAS is providing training on FASD at the White Earth Reservation, Mahnomen, MN for addiction and allied health professionals on May 2 & 3 2013. NOFAS will also conduct a three-hour workshop on FASD for the Office of Substance Abuse Services (OSAS) Department of Behavioral Health and Developmental Services, Richmond, Virginia May 10 2013.
Event: FASD: Best Practices in the Last Frontier. May 22-24, 2013. Anchorage, Alaska. The Arctic FASD Regional Training Center and the University of Alaska Anchorage Center for Behavioral Health Research and Services invites you to attend the 2013 conference on FASDs. They are looking for additional presenters. “This conference is designed for a wide variety of health, allied health, education, social, and human service professionals and providers, as well as the learning and networking needs of individuals with FASD and their families, and the professionals working with them.”
Webinar: Adults with Intellectual and Developmental Disabilities and Dementia; Assessment and Healthcare Practices May 15, 2013. 2:00 PM – 3:00 PM EST. Adults with Intellectual and Developmental Disabilities are aging and living longer than ever. Decline in their daily function with the possibility of developing dementia increases with age, especially in adults with Down syndrome. Seth Keller, MD Immediate Past President of the AADMD and Co-Chair of the National Task Group on Intellectual Disabilities and Dementia Practices will review how changes in function can be assessed so that an accurate and early diagnosis of dementia can be determined.

Look for announcements about the feature this week from CDC in Facebook and Twitter via CDCgov as well.
The feature includes:
A quiz related to alcohol use during pregnancy
Description and link to the recent Medscape CDC Expert Commentary video, ?Alcohol and Women: How to Screen and Intervene?
Access to the NOFAS Resource Directory
Other resources and information related to alcohol use during pregnancy and FASDs.
Please help us spread the word?
FASDs are completely preventable if alcohol is not consumed during pregnancy ? why take the risk?
The Institute of Addiction Studies: The Historic Summer School is celebrating its 70th anniversary, which will be held from June 23rd – 28th at Rutgers New Brunswick Campus. This year’s program includes over thirty-five unique courses, twenty workshops and lectures, and networking groups, among other experiences which focus on this year’s theme: Prevention and Recovery Through the Lifespan. Participants can earn up to 55 CEUs towards recertification.
This week is filled with content that is likely to support your work, such as:
Pre-Conference Day:
Offering two tracks, Prevention and Veteran Services, designed to examine innovative and effective practices in each field
Keynote speaker Dr. David Mee-Lee, Senior Vice President, The Change Companies
Lectures and Workshops, including:
Lifespan Theory & Strategic Task Development for Wellness in Recovery
12-Step Resistance Clients: An Alternative Approach to Working with People who Refuse to Attend 12-Step Meetings
Cultural Competence: Understanding its Role in our Work
DSM V: A Look at the Changes
Weeklong Courses, such as:
Adolescent at Risk: Beyond the Rehab Response
How to integrate CBT methods with clients engaged in 12-step groups
Family Therapy
Persuasive Communication: Promoting Sustainability with Accountability
Clinical Supervision
institute
Visit the The Alcohol Studies website for further details and full course descriptions, and consider joining us for this exciting and unique opportunity. If you have any questions, or need assistance, please feel free to contact, James Nguyen, at 732-445-4317 or by email at cas_ed@rutgers.edu.
FEATURES
Community
The only FASD clinic in Florida may be closing due to lack of funding Local news vide from WWSB in Sarasota, FL. “In the eight years the clinic at The Florida Center For Early Childhood has been open, funding for the fetal alcohol spectrum disorders clinic has wavered, but now, the threatened cuts are much more severe… If the state doesn’t come to an agreement on funding, [clinic director] Skoglund says the clinic will close, leaving hundreds of people without the vital services they need. “You can piecemeal these evaluations together, but really no one has the training and expertise we have. We’ve devoted so much time into specific training around this issue that folks won’t get diagnosed properly.” The CEO of the clinic is in Tallahassee now, working with lawmakers. They hope to know if their budget is funded within the next few weeks.”
Toronto FASD ad campaign turning heads one belly at a time “Ads displaying words such as ‘love’, ‘joy’, ‘mom’ and ‘hope’, have been turning heads because the letter ‘O’ is actually the bare belly of a pregnant woman. FASworld Toronto is the organization behind the campaign to raise awareness about fetal alcohol syndrome.”
Survey: 20% say an occasional glass of wine is fine during pregnancy A national survey of American adults released this month by Screening for Mental Health, Inc. reveals that many Americans hold dangerous misperceptions about the risks of alcohol use. “Over three-quarters (77%) of Americans think pregnant women should avoid alcohol altogether, while one-fifth (20%) think an occasional glass of wine is fine.”
Blog: “Husbands Who Drink During Their Wives’ Pregnancies Are a Real Buzz Kill” This pregnancy blog author writes, “I think it’s totally unfair for dudes to drink regularly when their pregnant wives can’t. Heck, we’re already giving up our own bodies for nearly a year to house and grow their kid — so kicking their drinking habit to the curb for that period of time is the least they can do. (Is that really too much to ask?)”
Research
Clinical Implications of a Link Between FASD and Autism or Asperger’s Disorder by Kieran O’Malley This article was published in “Recent Advances in Autism Spectrum Disorders – Volume I“ and is a “Neurodevelopmental Frame for Helping Understanding and Management.” Dr. O’Malley is a Child and Adolescent Psychologist and was interviewed by NOFAS at the 2011 International Conference on FASD. Watch the video of Dr. O’Malley.
Study: Cost of FASD Diagnosis in Canada This recently published research article has the stated purpose to “estimate the annual cost of FASD diagnosis on Canadian society.” The results of the study are, “Using the most conservative approach, it was estimated that an FASD evaluation requires 32 to 47 hours for one individual to be screened, referred, admitted, and diagnosed with an FASD diagnosis, which results in a total cost of $3,110 to $4,570 per person. The total cost of FASD diagnostic services in Canada ranges from $3.6 to $5.2 million (lower estimate), up to $5.0 to $7.3 million (upper estimate) per year.”
Events
Webinar: FASD: What You Need to Know w/ NOFAS’ Kathy Mitchell April 17, 2013. 2:00 PM – 3:00 PM EST. NOFAS Vice-President Kathy Mitchell will provide an overview about FASD through the lifespan. She will address both FASD prevention and treatment. Ms. Mitchell will review NOFAS prevention campaigns, including the clearinghouse, school and youth FASD prevention programs and birth mother initiatives. She will describe four interventions for individuals with FASD currently being researched (with CDC support). She will review resources and support for individuals and their families and investigate ways in which Arc Chapters, the NOFAS Affiliate Network, the Friends of NOFAS and FASD family support groups can network and partner to create local systems of care for individuals with FASD.
PDF: Conference: Fetal Alcohol/Neurobehavioral Conditions (FA/NB): Understanding and Application of a Brain-Based Approach, Presented by Diane V. Malbin, MSW (PDF) May 14-16, 2013. Kanuga Conference Center. Hendersonville, NC. This is the link for the PDF and the MAHEC registration information. If you would like to attend, please print the brochure, complete the registration and mail or fax it in today! DIANE V. MALBIN, MSW, is the founder and Executive Director of the nonprofit organization, FASCETS (Fetal Alcohol Syndrome Consultation, Education and Training Services, Inc.). She is the author of numerous papers and publications on FASD, and conducts trainings throughout the United States, Canada, Europe and Australia.
Funding Opportunity
Funding Opportunity from CDC’s Fetal Alcohol Syndrome Prevention Team “Advancing Alcohol Screening and Brief Intervention (aSBI) and CHOICES in American Indian and Alaska Native Populations through Training and Technical Assistance” Funding Opportunity Number: CDC-RFA-DD13-1301. Published in www.grants.gov. “Purpose: Alcohol Screening and Brief Intervention (aSBI) and CHOICES are evidence-based interventions that hold promise for reducing risky alcohol use for women of reproductive age and the general population… This program announcement is designed to provide training, technical assistance and capacity building by providing funding to up to two organizations that will work with clinics serving AI/AN populations in order to deliver these services…”
For more information contact Dr. Susan Adubato at 973-972-7717
or email adubatsu@umdnj.edu
