A woman recently gave birth to a baby that had a high level of alcohol at birth.
Read the story of a pregnant woman who gave birth to a baby drunk from alcohol.
Laura Parker is a member of the Circle of Hope Birth Mothers Network. In this video, she speaks to medical students at Georgetown University. The medical students enrolled in an FASD course organized by NOFAS. Laura discusses her alcoholism and the difficulty of being a parent to a person with FASD.
FEATURES
NOFAS Statements
NOFAS Supports Ian Rey NOFAS is proud to support Ian Rey in his fight to regain his job at Sprouts Farmers Market, a grocery store in Point Loma, California. Rey lives with Fetal Alcohol Syndrome and has proven himself a valuable employee of Sprouts as evidenced by his 14 years of service and his Employee of the Month award. He was fired earlier this month for erroneously taking home a coworkers jacket that he dutifully returned the next day when he realized his mistake.
NOFAS Objects to Tone of ABC News Article NOFAS objects to the tone of an ABC News article titled “Partum Shots: 9 Months of Diet Advice” about unwanted health advice that pregnant women receive. The article implies that the health recommendations to completely abstain from alcohol due to the risk of birth defects is a kind of nagging, pestering message that pregnant women are annoyed with. The article originally stated, incorrectly, that the position of ACOG, the American College of Obstetricians and Gynecologists, is that wine is safe during pregnancy in moderation.
Community
Dr. Oz column: Pregnancy and drinking still don’t mix Dr. Mehmet Oz of “The Dr. Oz Show” and Dr. Mike Roizen, chief medical officer at the Cleveland Clinic Wellness Institute, write on the issue of alcohol and pregnancy: “A fetus’s alcohol tolerance level is unknowable. And we don’t know what environmental stressors may switch on genes that pass along vulnerability to alcoholism or learning disabilities. The responsible thing is to say “no” to anything that might cause problems for your baby.”
ABC Local News story on FASD ABC News affiliate WLOS in North Carolina covers FASD in a Health Alert segment. The report profiles a mother and her 17-year old daughter who has FASD. Health professionals at Fullerton Genetics Center discuss FASD diagnosis.
Older couples adopting children with FASD Article on the trend of older adult couples choosing to adopt children, often with special needs. One parent, Rebecca Gawboy, has adopted seven children with FASD. “Some of these older parents are empty-nesters who apparently didn’t have their fill of child-rearing the first time around.” From The New York Times.
Research
U.S. Preventive Services Task Force (USPSTF) recommendations on Alcohol SBI “The USPSTF recommends that clinicians screen adults aged 18 years or older for alcohol misuse and provide persons engaged in risky or hazardous drinking with brief behavioral counseling interventions to reduce alcohol misuse. The USPSTF concludes that the current evidence is insufficient to assess the balance of benefits and harms of screening and behavioral counseling interventions in primary care settings to reduce alcohol misuse in adolescents.”
Policy
Vermont Department of Health launches ’049′ campaign “The Vermont Department of Health is launching an informational outreach campaign called ’049′…049 will be launched statewide with a news release, social media messages and web resources. Health Department district office staff will deliver posters, buttons and print materials to help health care providers advise and support their patients in the decision not to drink.”
NTSB recommends lowering blood alcohol level that constitutes drunken driving “The National Transportation Safety Board voted to recommend to states that they lower the blood-alcohol content that constitutes drunken driving. Currently, all 50 states have set a BAC level of .08, reflecting the percentage of alcohol, by volume, in the blood. If a driver is found to have a BAC level of .08 or above, he or she is subject to arrest and prosecution. The NTSB recommends dropping that to a BAC level of .05.” From NBC News.
Events
Webinar: FASD Intervention Strategies – Part I: A Global Approach to Interventions Appropriate to a Person with an FASD May 23, 2013. 1:00 PM-2:30 PM EST. “If it is accurate that a person with an FASD will always need an external executive function (per Sterling Clarren) it would behoove caregivers and service providers alike to be aware of intervention strategies that apply to every individual with an FASD and every situation relative to that individual. This webinar offers exactly that. Dr. Susan Doctor will discuss strategies that she calls “global” intervention strategies. She will spell out the rationale for and value of each global strategy as applied to the provision of appropriate supports for the individual with an FASD.”
Webinar: FASD Intervention Strategies – Part II: The Hope is in the Interventions: A Comprehensive Model of Hope June 20, 2013. 1:00 PM-2:30PM EST. “Here you will learn about a comprehensive model that can be utilized when in personal or professional relationship with an individual with an FASD. There are three types of strategies that will be discussed. The first is Individual Interventions – strategies to assist caregivers and service providers relative to the life circumstances of that individual. The second type is Dynamic Case Management – a method of a team approach to case management that can better assist the person with an FASD. Lastly will be the discussion of Policy Issues that can either assist or hinder the provision of appropriate supports. Remember, the hope is in the interventions!”
MOFAS Family Retreat in Brainerd, MN ”This summer you have 2 weekends to choose from: June 28-July 1, or July 26-29. MOFAS Summer Family Retreat 2013 will take place in Brainerd, just 150 miles northwest of the Twin Cities. We have collaborated with Confidence Learning Center to provide a safe and fun weekend experience. Please choose one retreat to attend this year so that we can have room for all families to join the fun! All activities and experiences are planned with the needs of individuals with an FASD in mind. MOFAS will again be providing training to all Learning Center Staff about FASD and what that means to an individual and a family.”
Save the Date: FASD Conference from MRFASTC August 2, 2013. NOFAS Spokesperson Kathy Mitchell will provide a keynote presentation. “The Nebraska and Iowa Chapters of the Midwest Regional Fetal Alcohol Syndrome Training Center invites to a continuing education event. In an effort to increase awareness and service quality, the FASD Conference 2013, brings together local and national experts in the areas of prevention, diagnosis, treatment and parenting of children affected by pre-natal drug and alcohol exposure.”
Event: FASD: Best Practices in the Last Frontier. May 22-24, 2013. Anchorage, Alaska. The Arctic FASD Regional Training Center and the University of Alaska Anchorage Center for Behavioral Health Research and Services invites you to attend the 2013 conference on FASDs. NOFAS’ Vice President and spokesperson, Kathy Mitchell, will discuss the importance of reaching birth mothers to prevent FASD during a lunchtime keynote.
Students teach FASD lessons in Monte Vista, CO “For several months, the young men and women of the Byron Syring DELTA Center, part of the Monte Vista School District, have been touring the Valley to do what they can to prevent mothers from drinking alcohol when with child. They have shared the tragic story of children fallen victim to Fetal Alcohol Spectrum Disorders (FASD) with their peers, college students, health professionals and the community at large with hope the constant sad endings will make an impression and stop babies from being born with a multitude of life lasting birth defects.”
British FASD Advocate wins award, thanked by Prime Minister “Prime Minister David Cameron… has named Maria Catterick from Stockton the latest winner of his Big Society award for her dedicated and selfless support to young people. Over the past nine years she has single-handedly taken in and cared for 26 children which has led to her launching the Foetal Alcohol Spectrum Disorder (FASD) Network which provides advice and campaigns for awareness of the condition caused by pregnant mothers who drink alcohol.”
Research
Events
Webinar: FASD Intervention Strategies – Part I: A Global Approach to Interventions Appropriate to a Person with an FASD May 23, 2013. 1:00 PM-2:30 PM EST. “If it is accurate that a person with an FASD will always need an external executive function (per Sterling Clarren) it would behoove caregivers and service providers alike to be aware of intervention strategies that apply to every individual with an FASD and every situation relative to that individual. This webinar offers exactly that. Dr. Susan Doctor will discuss strategies that she calls “global” intervention strategies. She will spell out the rationale for and value of each global strategy as applied to the provision of appropriate supports for the individual with an FASD.”
Event: NAMI Walks in Baltimore, MD May 18, 2013. 11:00 AM. Rash Field at Baltimore’s Inner Harbor. “NAMIWalks is the largest mental health education and fundraising effort in America. NAMIWalks brings together thousands of individuals and supporters to celebrate mental illness recovery, to honor those who have lost their lives to mental illness and to help raise funds, combat stigma and promote awareness.”
3rd International SAF France 2013 Symposium May 30 & 31, 2013. Cité Internationale Universitaire of Paris. The theme chosen this year is “Fetal Alcohol Spectrum Disorder : Prevention, Diagnosis and Intervention.” The objective is to mobilize the key players from various departments such as, Health, Social, Adoption, Education and Justice. The days will be moderated by the best national and international specialists, with a simultaneous French-English translation. Spaces are limited so consider registering. ?The pre-program, the call for papers and posters as well as the registration form are available on the website.
Webinar: FASD Intervention Strategies – Part II: The Hope is in the Interventions: A Comprehensive Model of Hope June 20, 2013. 1:00 PM-2:30PM EST. “Here you will learn about a comprehensive model that can be utilized when in personal or professional relationship with an individual with an FASD. There are three types of strategies that will be discussed. The first is Individual Interventions – strategies to assist caregivers and service providers relative to the life circumstances of that individual. The second type is Dynamic Case Management – a method of a team approach to case management that can better assist the person with an FASD. Lastly will be the discussion of Policy Issues that can either assist or hinder the provision of appropriate supports. Remember, the hope is in the interventions!
Wine During Pregnancy – NOFAS Responds to Message Board
Watch the Video
NOFAS Spokesperson Kathy Mitchell responds to comments expressing support for wine use during pregnancy that were posted on a message board on TheBump.com, a popular pregnancy website.
FEATURES
Community
Profile of Elizabeth Parra Dang of CDC’s FASD Prevention Team “Elizabeth ParraDang, MPH, [is] a behavioral scientist in the National Center on Birth Defects and Developmental Disabilities, and the Employee of the Month for April 2013. Dang is with the CDC Fetal Alcohol Syndrome Prevention Team and has been with the team for 12 years this summer… Dang said. “…I am honored to coordinate the FASD Regional Training Centers which provide trainings to medical and allied health students and practitioners on the prevention, identification, and treatment of FASDs, as well as projects that we have had over the years and currently with the American Academy of Pediatrics, the American College of Obstetricians and Gynecologists, and the National Organization on Fetal Alcohol Syndrome (NOFAS).”
Russia’s orphans: Government takes custody of children when parents can’t cope “Children in Russian orphanages are almost certain to have at least one disability. The disabilities can be congenital or related to alcohol consumption by the mother during pregnancy — or they have arisen because of the loss of emotional contact that comes with life in a state orphanage…A study of orphans in the Murmansk region [of Russia] in 2007, led by Laurie Miller of the Tufts Medical Center, found that 60 to 70 percent of the children had signs of fetal alcohol syndrome.” From Washington Post.
Video: Calgary man living with FASD speaks out about his struggles This video from a Calgary, CA community TV station profiles Myles Himmelreich, who lives with FASD. The video also features Erin Palashniuk of the Calgary Fetal Alcohol Network.
Research
Brain Scans Can Predict Which Alcoholics Are Most Likely to Relapse “The study, which was published in JAMA Psychiatry, found that those with elevated activity in a region called the ventromedial prefrontal cortex (vmPFC) even while they were at rest were eight times more likely to drink again within 90 days than those whose vmPFC was calmer when they were feeling relaxed.” From TIME.
Study Finds Women Who Drink Alcohol Before Pregnancy Less Likely To Take Multivitamins “Researchers from the University of California, San Diego Department of Pediatrics and Rady Children’s Hospital-San Diego, a research affiliate of UC San Diego School of Medicine, have found a link between multivitamin use and alcohol consumption before pregnancy, uncovering a need for education about the importance of vitamin supplementation, particularly among women who drink alcohol during their childbearing years.” From Health Canal.
Events
Free Online Training – FASD Basics with MOFAS May 9, 2013. 12:00pm-1:00pm. “This free online training with a MOFAS presenter is for anyone interested in learning more about Fetal Alcohol Spectrum Disorders (FASD) including parents, professionals and educators. Participants will gain a basic understanding of FASD, explore how alcohol affects the developing brain and discuss strategies for helping someone who is affected by an FASD.”
Event: NAMI Walks in Baltimore, MD May 18, 2013. 11:00 AM. Rash Field at Baltimore’s Inner Harbor. “NAMIWalks is the largest mental health education and fundraising effort in America. NAMIWalks brings together thousands of individuals and supporters to celebrate mental illness recovery, to honor those who have lost their lives to mental illness and to help raise funds, combat stigma and promote awareness.”
Event: Recovery Walks September 21, 2013. “Every September, the Substance Abuse and Mental Health Services Administration sponsors National Recovery Month to increase awareness and understanding of mental and/or substance use disorders. The 2013 Recovery Month theme, “Join the Voices for Recovery: Together on Pathways to Wellness,” represents the many ways that people can prevent behavioral health issues, seek treatment, and sustain recovery as part of a commitment to living a mentally, physically, emotionally, and spiritually healthy life.”
3rd International SAF France 2013 Symposium May 30 & 31, 2013. Cité Internationale Universitaire of Paris. The theme chosen this year is “Fetal Alcohol Spectrum Disorder : Prevention, Diagnosis and Intervention.” The objective is to mobilize the key players from various departments such as, Health, Social, Adoption, Education and Justice. The days will be moderated by the best national and international specialists, with a simultaneous French-English translation. Spaces are limited so consider registering. ?The pre-program, the call for papers and posters as well as the registration form are available on the website.
NOFAS Updates
NOFAS on Pinterest Follow NOFAS on our new Pinterest page for image sharing. This is a great opportunity to see and share images, such as FASD awareness graphics, fact sheets, videos of people with FASD, and more.
Warrior Mom Pendant for Mother’s Day! Looking for a Mother’s Day gift? Consider a beautiful pendant featuring the NOFAS Circle of Hope “Warrior Mom” logo. It comes in silver or gold with a matching 18? or 24? chain. The pendant depicts a proud and fearless woman surrounded by these words; Respect, Nurturing, Intuitive, and Empowered. It’s the perfect gift for mothers or expectant mothers of any age, and can be ordered here.

Community
Creating a Circle of Hope to Prevent FASD by Kathy Mitchell NOFAS Vice-President Kathy Mitchell wrote this piece on the Circle of Hope for Join Together, a collaboration of the Boston University School of Public Health and The Partnership at Drugfree.org. She writes about founding the Circle of Hope (COH), a mentoring program for birth mothers of children with FASD. The COH mission is “to increase understanding and support, and strengthen recovery, for women who drank during pregnancy, and their families.”
Can a Restaurant Refuse to Serve Alcohol to a Pregnant Woman? This post on Restaurants.com discusses the legal issues of refusing service to pregnant women. The post states, “Restaurants are private facilities and, as such, have the right, and ability, to enforce any policy they wish with regard to alcohol. This means that restaurants absolutely have the right to make it a policy not to serve alcohol to pregnant women. Unfortunately, this does not negate a pregnant woman’s rights to fair and equal service, and failure to serve a woman when she wishes to order drinks can lead to lawsuits.”
Video: Financial Literacy for Individuals with FASD This session is presented by the government of Alberta, Canada. It examines the financial literacy training needed by individuals with FASD.
Research
First-Ever Nationwide Survey Documents Dramatic Improvements in All Areas of Life For People In Recovery From Addiction This survey is released by Faces & Voices of Recovery. “There are over 23 million Americans in recovery from addiction in the US. The dramatic improvements associated with recovery affected all areas of life including a ten-fold decrease in involvement with the criminal justice system and use of costly emergency room departments and a 50 percent increase in participation in family activities and in paying taxes compared with their lives in active addiction. Yet, discriminatory practices in housing, employment, health insurance coverage and elsewhere remain tremendous barriers to recovery.”
Associations Between Multivitamin Supplement Use and Alcohol Consumption Before Pregnancy: Pregnancy Risk Assessment Monitoring System, 2004 to 2008 This research is published in Alcoholism: Clinical and Experimental Research. “This study explored associations between periconceptional alcohol use and multivitamin supplementation use. Weighted multivariable logistic regression was used to explore associations, adjusting for maternal education, maternal ethnicity, maternal age, household income, and parity.”
Events
Event: FASD: Best Practices in the Last Frontier. May 22-24, 2013. Anchorage, Alaska. The Arctic FASD Regional Training Center and the University of Alaska Anchorage Center for Behavioral Health Research and Services invites you to attend the 2013 conference on FASDs. They are looking for additional presenters. “This conference is designed for a wide variety of health, allied health, education, social, and human service professionals and providers, as well as the learning and networking needs of individuals with FASD and their families, and the professionals working with them.”
Event: 3rd International SAF France 2013 Symposium May 30 & 31, 2013. Cité Internationale Universitaire of Paris. The theme chosen this year is “Fetal Alcohol Spectrum Disorder : Prevention, Diagnosis and Intervention.” The objective is to mobilize the key players from various departments such as, Health, Social, Adoption, Education and Justice. The days will be moderated by the best national and international specialists, with a simultaneous French-English translation. Spaces are limited so consider registering. ?The pre-program, the call for papers and posters as well as the registration form are available on the website.
Webinar: Adults with Intellectual and Developmental Disabilities and Dementia; Assessment and Healthcare Practices May 15, 2013. 2:00 PM – 3:00 PM EST. “Adults with Intellectual and Developmental Disabilities are aging and living longer than ever. Decline in their daily function with the possibility of developing dementia increases with age, especially in adults with Down syndrome. Seth Keller, MD Immediate Past President of the AADMD and Co-Chair of the National Task Group on Intellectual Disabilities and Dementia Practices will review how changes in function can be assessed so that an accurate and early diagnosis of dementia can be determined.”
NOFAS Responses
Response to ‘Light Drinking’ Research NOFAS responds to a study from the International Journal of Obstetrics and Gynaecology (BJOG) that has been widely reported in the media as showing that light drinking is not harmful during pregnancy. The research was supported by University College, London and is the latest effort, in part, to create an evidence-base to support the “light” consumption of alcohol during pregnancy and influence public opinion on the subject.
Response to “Dear Abby” Advice on Alcohol Screening A question and answer about a doctor/patient discussion of alcohol use was published in the Dear Abby column. The question asked, in part: “What is the correct response when asked at a doctor’s office or hospital if you drink? I drink socially, maybe once a month. Should I say yes?” Abby responded, calling this amount of drinking “practically negligible.” Read the full response from NOFAS.
Community
People with Intellectual Disabilities and Sexual Violence “April is Sexual Assault Awareness Month and April 21, 2013 begins National Crime Victim’s Rights Week. People with disabilities face a disproportionate amount of sexual trauma. The rate of sexual abuse and assault is twice that is faced by people without disabilities. Those with cognitive disabilities face the greatest risk of all. Find out more about sexual violence and people with intellectual and developmental disabilities and the effort to raise awareness about sexual violence during April.”
Webinar Archive – FASD: What You Need to Know with Kathy Mitchell This is the archived video of NOFAS’ Kathy Mithcell’s webinar. You can access the video for free by entering your name and email. The webinar is an overview about FASD through the lifespan, addressing both FASD prevention and treatment.
Response to Light Drinking Study from CanFASD This is a response from Jocelyn Cook, Executive Director of the Canada Fetal Alcohol Spectrum Disorder Research Network (CanFASD), Canada’s first comprehensive national research network on FASD.
Research
Study: Aerobic Exercise May Mitigate Alcohol’s Brain Damaging Effects “Aerobic exercise was associated with less damage to specific parts of the brain’s white matter, though the researchers could not say how much exercise would balance a night on the town. They reported their findings in an online preview of publication in September’s journal Alcoholism: Clinical and Experimental Research.” – Los Angeles Times
Events
NOFAS Training for Addiction Health Professionals NOFAS is providing training on FASD at the White Earth Reservation, Mahnomen, MN for addiction and allied health professionals on May 2 & 3 2013. NOFAS will also conduct a three-hour workshop on FASD for the Office of Substance Abuse Services (OSAS) Department of Behavioral Health and Developmental Services, Richmond, Virginia May 10 2013.
Event: FASD: Best Practices in the Last Frontier. May 22-24, 2013. Anchorage, Alaska. The Arctic FASD Regional Training Center and the University of Alaska Anchorage Center for Behavioral Health Research and Services invites you to attend the 2013 conference on FASDs. They are looking for additional presenters. “This conference is designed for a wide variety of health, allied health, education, social, and human service professionals and providers, as well as the learning and networking needs of individuals with FASD and their families, and the professionals working with them.”
Webinar: Adults with Intellectual and Developmental Disabilities and Dementia; Assessment and Healthcare Practices May 15, 2013. 2:00 PM – 3:00 PM EST. Adults with Intellectual and Developmental Disabilities are aging and living longer than ever. Decline in their daily function with the possibility of developing dementia increases with age, especially in adults with Down syndrome. Seth Keller, MD Immediate Past President of the AADMD and Co-Chair of the National Task Group on Intellectual Disabilities and Dementia Practices will review how changes in function can be assessed so that an accurate and early diagnosis of dementia can be determined.

Look for announcements about the feature this week from CDC in Facebook and Twitter via CDCgov as well.
The feature includes:
A quiz related to alcohol use during pregnancy
Description and link to the recent Medscape CDC Expert Commentary video, ?Alcohol and Women: How to Screen and Intervene?
Access to the NOFAS Resource Directory
Other resources and information related to alcohol use during pregnancy and FASDs.
Please help us spread the word?
FASDs are completely preventable if alcohol is not consumed during pregnancy ? why take the risk?
For more information contact Dr. Susan Adubato at 973-972-7717
or email adubatsu@umdnj.edu
